The Christian Hoff BLOG...

Dear Friends, I am the national spokesperson for The Bachmann-Strauss Dystonia & Parkinson Foundation.

What is Dystonia?

• While not widely known, dystonia affects an estimated 500,000 people in North America alone- more than muscular dystrophy, Huntington's disease and Lou Gehrig's disease combined.
  
• Different forms of the disease affect the face, neck, throat, eyelids, arms, legs or torso. This devastating disease can appear in children and adults alike.

Why?

• There is no real answer to this puzzling question.
  
• There is no definitive test or diagnosis for this disease, nor is there a known cure.
  
• Dystonia is under-researched. As hundreds of thousands of adults and children suffer from symptoms related to the disease, a large majority of patients never receive a proper prognosis.
  
• Yet dystonia is not well known by the public or the general medical population.
  

What is going on?

• Something must be done to build public awareness of the disease and the need for funds for medical research.
  
• You can help. And we need your help.
  
• This charitable cause dramatically differs from any other medical cause because this disease is virtually unknown. In order to fight it, dystonia needs to become better known through public awareness.


• Increased public awareness will lead to increased research dollars.
  

Here is a way you can help right now:


Clips for a Cure was created by two children: Jacob and Carly, lifelong friends affected by dystonia in different ways. One was diagnosed with early-onset childhood dystonia when he was very young, while the other has watched her friend struggle with the disease for the greater part of his life. In an effort to help find a cure, they teamed up to create the Clips for a Cure campaign. Your purchase of this clip takes us one step closer to a cure. Thank you for your support!
Click Here to order Clips for a Cure! Clips are $5 Each(minimum 5)

Thank you for your kind support!

-Christian Hoff